|
|
|
|
| LEADER |
02689nam a2200241 a 4500 |
| 001 |
556326 |
| 005 |
20171111230020.0 |
| 008 |
080730s2009 mdu b 001 0 eng |
| 020 |
|
|
|a 0801891515 (hardcover : alk. paper)
|
| 040 |
|
|
|a DNLM/DLC
|
| 050 |
|
|
|a RJ255.6.D55
|b E84 2009
|
| 082 |
|
|
|2 22
|a 618.92/0042
|
| 245 |
|
|
|a Ethics and newborn genetic screening :
|b new technologies, new challenges /
|c edited by Mary Ann Baily and Thomas H. Murray.
|
| 260 |
|
|
|a Baltimore :
|b Johns Hopkins University Press,
|c 2009.
|
| 300 |
|
|
|a xvi, 354 p. ;
|c 24 cm.
|
| 504 |
|
|
|a Includes bibliographical references and index.
|
| 505 |
|
|
|a Fair distribution of newborn screening costs and benefits / Mary Ann Baily -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine DeMars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.] -- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.
|
| 650 |
|
|
|a Genetic disorders
|x Diagnosis
|x Moral and ethical aspects.
|
| 650 |
|
|
|a Newborn infants
|x Diseases
|x Diagnosis
|x Moral and ethical aspects.
|
| 650 |
|
|
|a Genetic screening
|x Moral and ethical aspects
|
| 700 |
1 |
|
|a Baily, Mary Ann
|
| 700 |
1 |
|
|a Murray, Thomas H.,
|
| 952 |
|
|
|a GrThPMO
|b 59b018d16c5ad17d7e5ae535
|c 952a
|d 9528
|e RJ255.6.D55E84 2009
|t 7
|x m
|z Books
|
